Dear Friends and Supporters:
Greetings!!
UMBILICAL CORD BLOOD BANKING
The Joanne Pang Foundation is pleased to announce the completion of a report titled “Umbilical Cord Blood Banking (From Yesterday’s Medical Waste to Today’s Medical Miracle)” in support of the establishment of the Northern California Cord Blood Bank (NCUBB) at the UCSF Children’s Hospital.
This brief overview with about 30 pages, which summaries the progress of umbilical cord blood banking in the past two decades, would help walk you through it in a simplified and readable format while not missing all key critical clinical aspects and potential medical, social, and economic benefits of this life-saving therapeutic treatment.
I would like to acknowledge the contribution from the JPF medical board, especially Dr. Morton Cowen of the UCSF Children’s Hospital for his extensive and in-depth review. The support from the JPF board of directors is also deeply appreciated.
The uses of the lifesaving stems cells in umbilical cord blood have been increasingly playing a critical role in treating life threatening diseases and many disorders. JPF is humble to be part of this evolution to help the needy patients for a chance at life.
AB52 UMBILICAL CORD BLOOD COLLECTION PROGRAM
Assembly Bill 52, introduced by Assembly Member Portantino and coauthored by Assembly Members Block, Blumenfield, Buchanan, and Price, is in a critical phase in the next one month. Whether it would survive the Appropriations Committee will depend on your support. If becoming a law, it would support the umbilical cord blood banking in California and ensure a chance of life-saving transplant for many patients, especially from various ethnic communities and mixed races, for many decades to come.
Please go to the links in the previous JPF update in Joe’s blog, email to all members of the Appropriations Committee, and register your support. For your convenience, Lisa Napoli, a JPF board member, has drafted a generic letter for you to voice your support of AB52. Please feel free to edit or modify it if necessary.
JPF is proud to be one of the support organizations for this bill.
WALK’ N RUN FOR KIDS AND CAMP OKIZU
A fundraisng letter from Prof. Michael Amylon of Stanford University on behalf of the Okizu Foundation is attached for your review. Prof. Amylon is a member of the JPF medical board. Providing patient assistance and family support are both one of the goals of the JPF. JPF will support these activities and I would like to request for your support as well.
Witnessing the struggles of many little children at the transplant unit was an unforgettable experience for me. It was like being in a war zone fighting for survival. I was also amazed at the willingness of the patents giving up everything just to be together with their little ones. Parents made these sacrifices readily no matter if they would do so for just weeks or months. For as long as there is even only a glimpse of hope, they would fight on to keep their little ones.
To support children with cancer and their families, please visit the following link:
http://www.active.com/donate/OkizuFoundation/drmike
Thank you very much for the help!!
Joseph
Tuesday, April 28, 2009
Monday, March 30, 2009
AB-52 "Umbilical Cord Blood Collection Program"
Dear Friends and Supporters:
The Joanne Pang Foundation is pleased to lend its support to legislation pending in the California State Assembly which aims to increase public cord blood banking.
This bill “Umbilical Cord Blood Collection Program,” referred to as AB-52, would raise the fee for certified birth certificates by $2. This modest increase would generate $3 million per year and support California's pioneering Umbilical Cord Blood Program. This legislation dovetails with the Foundation's long-standing interest in saving lives by increasing the number of cord blood donors. A non-controversial source of stem cells, cord blood is a lifesaving gift we cannot afford to continue to throw away.
Assemblyman Anthony Portantino has sponsored a bill which just passed the Assembly Health Committee and will soon be coming before Appropriations for consideration. On behalf of the Foundation's board of directors, I encourage you to write to individual members of the Appropriations Committee (see link below with embedded email addresses) to express your support of AB-52.
http://www.assembly.ca.gov/acs/newcomframeset.asp?committee=43
As you are aware, cord blood has the capacity to heal more than 70 blood-related diseases. Traditionally discarded as biological waste, cord blood is now seen as providing medical miracles. The Joanne Pang Foundation seeks to increase the public cord blood donor pool, especially to benefit ethnic and racial minorities who are currently poorly represented in the national registry. The Foundation has been actively engaged in building awareness and capacity for public banking.
This bill helps provide much-needed funding for cord blood collection at no cost to the donor mother, a goal we strongly support. Ultimately, we hope that this new source of state money can be directed in part to the Northern California Umbilical Cord Blood Bank at UCSF Children's Hospital.
We hope you will take a few moments to write to these state legislators to let them know you back this bill. Additionally, you may wish to write to the Majority Whip Fiona Ma who is District 12's representative.
Her email is: Assemblymember.Ma@assembly.ca.gov
Another available method to comment on a bill in the Assembly or Senate is through this link:
http://www.assembly.ca.gov/acs/acsframeset2text.htm
Thank you for your help!
Sincerely,
Joseph
The Joanne Pang Foundation is pleased to lend its support to legislation pending in the California State Assembly which aims to increase public cord blood banking.
This bill “Umbilical Cord Blood Collection Program,” referred to as AB-52, would raise the fee for certified birth certificates by $2. This modest increase would generate $3 million per year and support California's pioneering Umbilical Cord Blood Program. This legislation dovetails with the Foundation's long-standing interest in saving lives by increasing the number of cord blood donors. A non-controversial source of stem cells, cord blood is a lifesaving gift we cannot afford to continue to throw away.
Assemblyman Anthony Portantino has sponsored a bill which just passed the Assembly Health Committee and will soon be coming before Appropriations for consideration. On behalf of the Foundation's board of directors, I encourage you to write to individual members of the Appropriations Committee (see link below with embedded email addresses) to express your support of AB-52.
http://www.assembly.ca.gov/acs/newcomframeset.asp?committee=43
As you are aware, cord blood has the capacity to heal more than 70 blood-related diseases. Traditionally discarded as biological waste, cord blood is now seen as providing medical miracles. The Joanne Pang Foundation seeks to increase the public cord blood donor pool, especially to benefit ethnic and racial minorities who are currently poorly represented in the national registry. The Foundation has been actively engaged in building awareness and capacity for public banking.
This bill helps provide much-needed funding for cord blood collection at no cost to the donor mother, a goal we strongly support. Ultimately, we hope that this new source of state money can be directed in part to the Northern California Umbilical Cord Blood Bank at UCSF Children's Hospital.
We hope you will take a few moments to write to these state legislators to let them know you back this bill. Additionally, you may wish to write to the Majority Whip Fiona Ma who is District 12's representative.
Her email is: Assemblymember.Ma@assembly.ca.gov
Another available method to comment on a bill in the Assembly or Senate is through this link:
http://www.assembly.ca.gov/acs/acsframeset2text.htm
Thank you for your help!
Sincerely,
Joseph
Tuesday, March 3, 2009
$10K Challenge Fund to JPF
Dear Friends:
Greetings!!
$10K CHALLENGE FUND TO JPF
We received a generous challenge grant via a donor advised fund at the Schwab Charitable Fund last month. Currently, in respect of the donor’s intention, this grant is placed in a restricted account with the Foundation.
The good news is that this challenge grant, as if a red envelope in celebration of the New Year 2009, has arrived at the Foundation even before we work on matching this particular fund. It shows that the donor values the potential impact of this life-saving NCUBB project and has the confidence that the supporters of the Joanne Pang Foundation will be able to magnify this grant exponentially.
Individual contributions at the $50, $100, $200 or $500 level will help us redeem this grant and transfer it to a general account for the establishment of the NCUBB project.
While many of us are hurting financially in the midst of this economic storm, it would be more devastating to the patients and their families. Let’s join hands in hands in this journey of faith, hope, and love to help them overcome the adversaries.
UMBILICAL CORD BLOOD BANKING
We are currently working on a report titled Umbilical Cord Blood Banking (From Yesterday’s Medical Waste to Today’s Medical Miracle) in support of the establishment of NCUBB at the UCSF Children’s Hospital. It would be ready for distribution shortly. If you would like to have a copy, please contact Lisa Napoli at Lisa@joannepang.org.
For many of you who are still unfamiliar with the potential impact of this medical miracle, this brief overview with about 30 pages, which summaries the progress of umbilical cord blood banking in the past two decades, would help walk you through it in a simplified and readable format while not missing all key critical clinical aspects and potential social benefits of this life-saving therapeutic treatment.
May God bless you and give you peace in the midst of this challenging economic doldrums!!
Joseph
Greetings!!
$10K CHALLENGE FUND TO JPF
We received a generous challenge grant via a donor advised fund at the Schwab Charitable Fund last month. Currently, in respect of the donor’s intention, this grant is placed in a restricted account with the Foundation.
The good news is that this challenge grant, as if a red envelope in celebration of the New Year 2009, has arrived at the Foundation even before we work on matching this particular fund. It shows that the donor values the potential impact of this life-saving NCUBB project and has the confidence that the supporters of the Joanne Pang Foundation will be able to magnify this grant exponentially.
Individual contributions at the $50, $100, $200 or $500 level will help us redeem this grant and transfer it to a general account for the establishment of the NCUBB project.
While many of us are hurting financially in the midst of this economic storm, it would be more devastating to the patients and their families. Let’s join hands in hands in this journey of faith, hope, and love to help them overcome the adversaries.
UMBILICAL CORD BLOOD BANKING
We are currently working on a report titled Umbilical Cord Blood Banking (From Yesterday’s Medical Waste to Today’s Medical Miracle) in support of the establishment of NCUBB at the UCSF Children’s Hospital. It would be ready for distribution shortly. If you would like to have a copy, please contact Lisa Napoli at Lisa@joannepang.org.
For many of you who are still unfamiliar with the potential impact of this medical miracle, this brief overview with about 30 pages, which summaries the progress of umbilical cord blood banking in the past two decades, would help walk you through it in a simplified and readable format while not missing all key critical clinical aspects and potential social benefits of this life-saving therapeutic treatment.
May God bless you and give you peace in the midst of this challenging economic doldrums!!
Joseph
Wednesday, December 31, 2008
A Memorable Red Kite Gala
Dear Friends:
Wishing you all Happy New Year and a Smooth Sailing through 2009!!
Approximately 250 people attended the first annual Red Kite Gala last month. The evening was co-hosted by Jana Katsuyama, reporter of KTVU Channel 2 News, and Scott Hildula, president of the Joanne Pang Foundation. The highlights of the evening were the Life Saver Award to Dr. Jordan Wilbur for his lifetime contribution in pediatric cancer treatment, and the presentation of an advocacy film titled “One Child, One Cord, and Two Lives,” which was co-illustrated by Kimberley Jones, Eric, Dr. Morton Cowan, and Brian Bender.
I was speechless and deeply touched by the warm support from everyone for this NCUBB project at the gala. Truly, the benefits of umbilical cord blood therapeutic treatment for leukemia and other cancers are indisputable. However, the need for a nonprofit and public umbilical cord blood bank in Northern California is long overdue. If it were God’s intention that Joanne be a messenger of this terrible disease, leukemia, she certainly had done her part.
We plan to consult with the key hospital officials in the next few months to see if we could first start this life-saving project in the first half of 2009 as a collection site-a logical step before a full-blown cord blood bank is put in place. The testing and the storage of each cord blood unit would be managed by other reputable cord blood banks. In light of the current economic doldrums, we believe that this intermediate step would permit us to quickly help expand the umbilical cord blood registries to be available worldwide to all patients in searching for a life-saving cord blood transplantation.
Finally, on behalf of all JPF board members, I would like to express our wholehearted appreciation to the honorary gala chairs, planning committee chairs, auction donors, and attendees for joining this “Journey of Hope” and providing unwavering support for the patients struggling with cancer, and their loving families.
Blessings,
Joe.
Wishing you all Happy New Year and a Smooth Sailing through 2009!!
Approximately 250 people attended the first annual Red Kite Gala last month. The evening was co-hosted by Jana Katsuyama, reporter of KTVU Channel 2 News, and Scott Hildula, president of the Joanne Pang Foundation. The highlights of the evening were the Life Saver Award to Dr. Jordan Wilbur for his lifetime contribution in pediatric cancer treatment, and the presentation of an advocacy film titled “One Child, One Cord, and Two Lives,” which was co-illustrated by Kimberley Jones, Eric, Dr. Morton Cowan, and Brian Bender.
I was speechless and deeply touched by the warm support from everyone for this NCUBB project at the gala. Truly, the benefits of umbilical cord blood therapeutic treatment for leukemia and other cancers are indisputable. However, the need for a nonprofit and public umbilical cord blood bank in Northern California is long overdue. If it were God’s intention that Joanne be a messenger of this terrible disease, leukemia, she certainly had done her part.
We plan to consult with the key hospital officials in the next few months to see if we could first start this life-saving project in the first half of 2009 as a collection site-a logical step before a full-blown cord blood bank is put in place. The testing and the storage of each cord blood unit would be managed by other reputable cord blood banks. In light of the current economic doldrums, we believe that this intermediate step would permit us to quickly help expand the umbilical cord blood registries to be available worldwide to all patients in searching for a life-saving cord blood transplantation.
Finally, on behalf of all JPF board members, I would like to express our wholehearted appreciation to the honorary gala chairs, planning committee chairs, auction donors, and attendees for joining this “Journey of Hope” and providing unwavering support for the patients struggling with cancer, and their loving families.
Blessings,
Joe.
Wednesday, October 29, 2008
Annual Public Joanne Pang Foundation Meeting & Red Kite Gala
Dear Friends:
Greetings!!
ANNUAL PUBLIC JOANNE PANG FOUNDATION MEETING
Annual Public Joanne Pang Foundation Meeting is scheduled for Saturday, November 15, 2:00-4:00pm. The meeting is to be held at the Lower Church of St Cecilia Parish, 2555 17th Ave, San Francisco, CA 94116.
Meeting is open to the public to scrutinize our accounting procedures and our accomplishments for the year. Refreshment will be provided. Please contact Scott Hildula at scott@joannepang.org if you need additional information.
RED KITE GALA
The Journey of Hope Red Kite Gala is to be held at the United Irish Cultural Center, 2700 45th Avenue (at Sloat Boulevard, near San Francisco Zoo) on Saturday, November 22.
Funds raised from the event will support the establishment of the Northern California Umbilical Cord Blood Bank at UCSF Children’s Hospital. Dr. Jordan Wilbur of Cancer Hope will be honored for his decades of work saving cancer-stricken children and adults with the first annual "Life Saver Award."
We truly need your participation and help support the patients in need of life-saving transplant to overcome many grave diseases. If you haven’t received the invitation package in the mail within the past week, please accept my apology and we could have misplaced your contact information. We would be glad to mail you one if you could kindly contact Sally Brien Holper at sally@joannepang.org. Thanks.
Cheers,
Joe.
Greetings!!
ANNUAL PUBLIC JOANNE PANG FOUNDATION MEETING
Annual Public Joanne Pang Foundation Meeting is scheduled for Saturday, November 15, 2:00-4:00pm. The meeting is to be held at the Lower Church of St Cecilia Parish, 2555 17th Ave, San Francisco, CA 94116.
Meeting is open to the public to scrutinize our accounting procedures and our accomplishments for the year. Refreshment will be provided. Please contact Scott Hildula at scott@joannepang.org if you need additional information.
RED KITE GALA
The Journey of Hope Red Kite Gala is to be held at the United Irish Cultural Center, 2700 45th Avenue (at Sloat Boulevard, near San Francisco Zoo) on Saturday, November 22.
Funds raised from the event will support the establishment of the Northern California Umbilical Cord Blood Bank at UCSF Children’s Hospital. Dr. Jordan Wilbur of Cancer Hope will be honored for his decades of work saving cancer-stricken children and adults with the first annual "Life Saver Award."
We truly need your participation and help support the patients in need of life-saving transplant to overcome many grave diseases. If you haven’t received the invitation package in the mail within the past week, please accept my apology and we could have misplaced your contact information. We would be glad to mail you one if you could kindly contact Sally Brien Holper at sally@joannepang.org. Thanks.
Cheers,
Joe.
Wednesday, October 1, 2008
A Journey of Hope
RED KITE GALA HONORARY CHAIRS
The JPF is honored to announce the addition of Speaker of the House Nancy Pelosi and Senator Dianne Feinstein to the list of the Red Kite Gala Honorary Chairs. The addition of these important members of the political community and strong support from the public as well as medical community further demonstrates the commitment to a public, non-profit umbilical cord blood bank in Northern California.
With the ethnic diversity found in the Bay Area, it is feasible that NCUBB (Northern California Umbilical Cord Blood Bank) could offer every eligible patient a chance at a life-saving transplant using the delivered placenta and umbilical cord. The advantages of using umbilical cord blood could be summarized as follows:
• A rich source of stem cells
• Less stringent matching criteria (For a bone marrow transplant, a minimum of 5/6 match is a must. For a cord blood transplant, a low 3/6 match would work)
• Less risk of graft vs. host disease (GVHD)
• Less risk of viral infections (baby stem cells are less infected with various viruses)
• Easily available within 72 hours (if the cord blood unit is already stored in the cord blood bank)
• Collected non-invasively
ACKNOWLEDGMENTS
The JPF is pleased to receive Red Kite Flyer level corporate sponsorship from Scott Hildula of the RedUmbrella Group and Gregory Porter of the Silverman, Krantz & Porter accountancy corporation. Scott Hildua and Gregory Porter are both members of the JPF board. Red Kite Flyer level – $2500+ sponsorship includes a table of 10, preferred seating, a full page ad in the event program and recognition on the Joanne Pang Foundation website.
In addition, the JPF is pleased to receive Partners level institutional support ($10K or higher) from Isabel Chiu of the En-Yong Foundation. Isabel Chiu is the founder of American Cancer Society-California Chinese Unit. Institutional donors will be proudly recognized in, but not limited to, a custom-designed plaque. The plaque will be displayed on the wall within the facilities of the NCUBB in perpetuity or as long as it is in operational.
If you wish to join the “journey of hope”, help us distribute the Red Kite brochures, and invite your friends and employers to support the NCUBB project, please feel free to contact Sally Brien Holper at sally@joannepang.org.
What Cancer cannot do-
It cannot cripple love.
It cannot shatter hope.
It cannot corrode faith.
It cannot suppress memories.
It cannot silence courage.
Blessings,
Joe Pang
The JPF is honored to announce the addition of Speaker of the House Nancy Pelosi and Senator Dianne Feinstein to the list of the Red Kite Gala Honorary Chairs. The addition of these important members of the political community and strong support from the public as well as medical community further demonstrates the commitment to a public, non-profit umbilical cord blood bank in Northern California.
With the ethnic diversity found in the Bay Area, it is feasible that NCUBB (Northern California Umbilical Cord Blood Bank) could offer every eligible patient a chance at a life-saving transplant using the delivered placenta and umbilical cord. The advantages of using umbilical cord blood could be summarized as follows:
• A rich source of stem cells
• Less stringent matching criteria (For a bone marrow transplant, a minimum of 5/6 match is a must. For a cord blood transplant, a low 3/6 match would work)
• Less risk of graft vs. host disease (GVHD)
• Less risk of viral infections (baby stem cells are less infected with various viruses)
• Easily available within 72 hours (if the cord blood unit is already stored in the cord blood bank)
• Collected non-invasively
ACKNOWLEDGMENTS
The JPF is pleased to receive Red Kite Flyer level corporate sponsorship from Scott Hildula of the RedUmbrella Group and Gregory Porter of the Silverman, Krantz & Porter accountancy corporation. Scott Hildua and Gregory Porter are both members of the JPF board. Red Kite Flyer level – $2500+ sponsorship includes a table of 10, preferred seating, a full page ad in the event program and recognition on the Joanne Pang Foundation website.
In addition, the JPF is pleased to receive Partners level institutional support ($10K or higher) from Isabel Chiu of the En-Yong Foundation. Isabel Chiu is the founder of American Cancer Society-California Chinese Unit. Institutional donors will be proudly recognized in, but not limited to, a custom-designed plaque. The plaque will be displayed on the wall within the facilities of the NCUBB in perpetuity or as long as it is in operational.
If you wish to join the “journey of hope”, help us distribute the Red Kite brochures, and invite your friends and employers to support the NCUBB project, please feel free to contact Sally Brien Holper at sally@joannepang.org.
What Cancer cannot do-
It cannot cripple love.
It cannot shatter hope.
It cannot corrode faith.
It cannot suppress memories.
It cannot silence courage.
Blessings,
Joe Pang
Monday, August 25, 2008
Corporate Sponsorship Needed for the RedKite Gala
Dear Friends:
Wishing you a blissful summer!!
REDKITE GALA
The JPF is hosting the first annual Red Kite Gala fundraising dinner on Saturday, November 22, 2008 at the Irish Cultural Center in San Francisco. Proceeds will fund the Northern California Umbilical Cord Blood Bank. We have enlisted support from the following community and medical leaders.
Red Kite Gala Honorary Chairs:
Congressman Dan Lungren
Congresswoman Jackie Speier
Senator Leland Y. Yee, Ph.D.
Assemblywoman Fiona Ma
San Francisco Supervisor Michela Alioto-Pier
San Francisco Supervisor Carmen Chu
San Francisco Supervisor Sean Elsbernd
Morton Cowan, M.D., UCSF, Children’s Hospital
Mitchell Katz, M.D., Director, San Francisco Public Health Department
Michael Amylon, M.D., Stanford University
Joanne Kurtzberg, M.D., Duke Medical Center
Jordan Wilbur, M.D., Cancer Hope
Rev. Msgr. Michael Harriman, Pastor, St. Cecilia Parish
We are asking for support from corporations, foundations and organizations to help raise $2.5 M for this NCUBB project. Please help us by asking your employers for sponsorship or matching grants for this event. Please help us turn the biological medical waste-placenta and umbilical cord in the San Francisco Bay Area into a miracle of life-saving therapeutic treatment for many patients with serious diseases in Northern California and worldwide. Umbilical cord blood stem cell transplants have been increasingly recognized as an effective treatment option for cancer, immune deficiencies and genetic disorders, etc, in the 21st century.
HADLEY HOPE FUND NEEDED TO SAVE PEYTON AND KAYLA
The Hadley family drove down from the state of Oregon and met with me in San Francisco on Saturday, August 9. Two of their three children are affected with Niemann-Pick Type C disease, a neurodegenerative illness in nature. It is similar to Alzheimer's disease in children. For additional information, please visit their website at www.hadleyhope.com.
The symptoms for Peyton, their eldest child at the age of 11, began two and a half years ago, and it took almost two years to receive a diagnosis. Peyton, once an early reader and talker, began cognitive decline, weight loss, and now speaks very slowly. Kayla, a lovely girl, is also sadly diagnosed with this disease. I could sympathize with their parents, Bryan and Laura, as it is agonizing and devastating to watch the children degenerating slowly to their end-point. According to recent research, they have found that umbilical cord blood stem cell transplantation may possibly be one therapy toward a cure. A cord blood experiment will be conducted in NP-C mice in the United States in the next couple of months that will test the viability of treatment. They plan to provide $100,000 to fund research and trials in the States.
Hopefully, once the NCUBB project is up and running, JPF will be able to focus on funding research and sponsoring clinical trials related to the use of the umbilical cord blood stem cells.
Blessings,
Joseph Pang
Wishing you a blissful summer!!
REDKITE GALA
The JPF is hosting the first annual Red Kite Gala fundraising dinner on Saturday, November 22, 2008 at the Irish Cultural Center in San Francisco. Proceeds will fund the Northern California Umbilical Cord Blood Bank. We have enlisted support from the following community and medical leaders.
Red Kite Gala Honorary Chairs:
Congressman Dan Lungren
Congresswoman Jackie Speier
Senator Leland Y. Yee, Ph.D.
Assemblywoman Fiona Ma
San Francisco Supervisor Michela Alioto-Pier
San Francisco Supervisor Carmen Chu
San Francisco Supervisor Sean Elsbernd
Morton Cowan, M.D., UCSF, Children’s Hospital
Mitchell Katz, M.D., Director, San Francisco Public Health Department
Michael Amylon, M.D., Stanford University
Joanne Kurtzberg, M.D., Duke Medical Center
Jordan Wilbur, M.D., Cancer Hope
Rev. Msgr. Michael Harriman, Pastor, St. Cecilia Parish
We are asking for support from corporations, foundations and organizations to help raise $2.5 M for this NCUBB project. Please help us by asking your employers for sponsorship or matching grants for this event. Please help us turn the biological medical waste-placenta and umbilical cord in the San Francisco Bay Area into a miracle of life-saving therapeutic treatment for many patients with serious diseases in Northern California and worldwide. Umbilical cord blood stem cell transplants have been increasingly recognized as an effective treatment option for cancer, immune deficiencies and genetic disorders, etc, in the 21st century.
HADLEY HOPE FUND NEEDED TO SAVE PEYTON AND KAYLA
The Hadley family drove down from the state of Oregon and met with me in San Francisco on Saturday, August 9. Two of their three children are affected with Niemann-Pick Type C disease, a neurodegenerative illness in nature. It is similar to Alzheimer's disease in children. For additional information, please visit their website at www.hadleyhope.com.
The symptoms for Peyton, their eldest child at the age of 11, began two and a half years ago, and it took almost two years to receive a diagnosis. Peyton, once an early reader and talker, began cognitive decline, weight loss, and now speaks very slowly. Kayla, a lovely girl, is also sadly diagnosed with this disease. I could sympathize with their parents, Bryan and Laura, as it is agonizing and devastating to watch the children degenerating slowly to their end-point. According to recent research, they have found that umbilical cord blood stem cell transplantation may possibly be one therapy toward a cure. A cord blood experiment will be conducted in NP-C mice in the United States in the next couple of months that will test the viability of treatment. They plan to provide $100,000 to fund research and trials in the States.
Hopefully, once the NCUBB project is up and running, JPF will be able to focus on funding research and sponsoring clinical trials related to the use of the umbilical cord blood stem cells.
Blessings,
Joseph Pang
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