Tuesday, April 28, 2009

Umbilical Cord Blood Banking

Dear Friends and Supporters:

Greetings!!

UMBILICAL CORD BLOOD BANKING
The Joanne Pang Foundation is pleased to announce the completion of a report titled “Umbilical Cord Blood Banking (From Yesterday’s Medical Waste to Today’s Medical Miracle)” in support of the establishment of the Northern California Cord Blood Bank (NCUBB) at the UCSF Children’s Hospital.

This brief overview with about 30 pages, which summaries the progress of umbilical cord blood banking in the past two decades, would help walk you through it in a simplified and readable format while not missing all key critical clinical aspects and potential medical, social, and economic benefits of this life-saving therapeutic treatment.

I would like to acknowledge the contribution from the JPF medical board, especially Dr. Morton Cowen of the UCSF Children’s Hospital for his extensive and in-depth review. The support from the JPF board of directors is also deeply appreciated.

The uses of the lifesaving stems cells in umbilical cord blood have been increasingly playing a critical role in treating life threatening diseases and many disorders. JPF is humble to be part of this evolution to help the needy patients for a chance at life.

AB52 UMBILICAL CORD BLOOD COLLECTION PROGRAM
Assembly Bill 52, introduced by Assembly Member Portantino and coauthored by Assembly Members Block, Blumenfield, Buchanan, and Price, is in a critical phase in the next one month. Whether it would survive the Appropriations Committee will depend on your support. If becoming a law, it would support the umbilical cord blood banking in California and ensure a chance of life-saving transplant for many patients, especially from various ethnic communities and mixed races, for many decades to come.

Please go to the links in the previous JPF update in Joe’s blog, email to all members of the Appropriations Committee, and register your support. For your convenience, Lisa Napoli, a JPF board member, has drafted a generic letter for you to voice your support of AB52. Please feel free to edit or modify it if necessary.

JPF is proud to be one of the support organizations for this bill.

WALK’ N RUN FOR KIDS AND CAMP OKIZU
A fundraisng letter from Prof. Michael Amylon of Stanford University on behalf of the Okizu Foundation is attached for your review. Prof. Amylon is a member of the JPF medical board. Providing patient assistance and family support are both one of the goals of the JPF. JPF will support these activities and I would like to request for your support as well.

Witnessing the struggles of many little children at the transplant unit was an unforgettable experience for me. It was like being in a war zone fighting for survival. I was also amazed at the willingness of the patents giving up everything just to be together with their little ones. Parents made these sacrifices readily no matter if they would do so for just weeks or months. For as long as there is even only a glimpse of hope, they would fight on to keep their little ones.

To support children with cancer and their families, please visit the following link:
http://www.active.com/donate/OkizuFoundation/drmike

Thank you very much for the help!!


Joseph

Monday, March 30, 2009

AB-52 "Umbilical Cord Blood Collection Program"

Dear Friends and Supporters:

The Joanne Pang Foundation is pleased to lend its support to legislation pending in the California State Assembly which aims to increase public cord blood banking.

This bill “Umbilical Cord Blood Collection Program,” referred to as AB-52, would raise the fee for certified birth certificates by $2. This modest increase would generate $3 million per year and support California's pioneering Umbilical Cord Blood Program. This legislation dovetails with the Foundation's long-standing interest in saving lives by increasing the number of cord blood donors. A non-controversial source of stem cells, cord blood is a lifesaving gift we cannot afford to continue to throw away.

Assemblyman Anthony Portantino has sponsored a bill which just passed the Assembly Health Committee and will soon be coming before Appropriations for consideration. On behalf of the Foundation's board of directors, I encourage you to write to individual members of the Appropriations Committee (see link below with embedded email addresses) to express your support of AB-52.

http://www.assembly.ca.gov/acs/newcomframeset.asp?committee=43

As you are aware, cord blood has the capacity to heal more than 70 blood-related diseases. Traditionally discarded as biological waste, cord blood is now seen as providing medical miracles. The Joanne Pang Foundation seeks to increase the public cord blood donor pool, especially to benefit ethnic and racial minorities who are currently poorly represented in the national registry. The Foundation has been actively engaged in building awareness and capacity for public banking.

This bill helps provide much-needed funding for cord blood collection at no cost to the donor mother, a goal we strongly support. Ultimately, we hope that this new source of state money can be directed in part to the Northern California Umbilical Cord Blood Bank at UCSF Children's Hospital.

We hope you will take a few moments to write to these state legislators to let them know you back this bill. Additionally, you may wish to write to the Majority Whip Fiona Ma who is District 12's representative.

Her email is: Assemblymember.Ma@assembly.ca.gov

Another available method to comment on a bill in the Assembly or Senate is through this link:

http://www.assembly.ca.gov/acs/acsframeset2text.htm

Thank you for your help!

Sincerely,


Joseph

Tuesday, March 3, 2009

$10K Challenge Fund to JPF

Dear Friends:

Greetings!!


$10K CHALLENGE FUND TO JPF
We received a generous challenge grant via a donor advised fund at the Schwab Charitable Fund last month. Currently, in respect of the donor’s intention, this grant is placed in a restricted account with the Foundation.

The good news is that this challenge grant, as if a red envelope in celebration of the New Year 2009, has arrived at the Foundation even before we work on matching this particular fund. It shows that the donor values the potential impact of this life-saving NCUBB project and has the confidence that the supporters of the Joanne Pang Foundation will be able to magnify this grant exponentially.

Individual contributions at the $50, $100, $200 or $500 level will help us redeem this grant and transfer it to a general account for the establishment of the NCUBB project.

While many of us are hurting financially in the midst of this economic storm, it would be more devastating to the patients and their families. Let’s join hands in hands in this journey of faith, hope, and love to help them overcome the adversaries.


UMBILICAL CORD BLOOD BANKING
We are currently working on a report titled Umbilical Cord Blood Banking (From Yesterday’s Medical Waste to Today’s Medical Miracle) in support of the establishment of NCUBB at the UCSF Children’s Hospital. It would be ready for distribution shortly. If you would like to have a copy, please contact Lisa Napoli at Lisa@joannepang.org.

For many of you who are still unfamiliar with the potential impact of this medical miracle, this brief overview with about 30 pages, which summaries the progress of umbilical cord blood banking in the past two decades, would help walk you through it in a simplified and readable format while not missing all key critical clinical aspects and potential social benefits of this life-saving therapeutic treatment.

May God bless you and give you peace in the midst of this challenging economic doldrums!!

Joseph